Aaron is officially out of the drug trial in Sacramento. Had he not had a brain MRI he would still be eligible, but because he was having balance issues and some slurred speech a few weeks ago, we needed to make sure the cancer wasn't wide spread in his brain. His ct scan showed minimal progression in the lungs and the MRI showed one small, 5mm, spot of cancer in his brain. That spot is what got him booted out of the trial. Now we move on to the next treatment. We will meet with a doctor in Colorado to discuss options and Aaron has already signed up for another possible drug trial in Sacramento. In order to be eligible for that trial he would need another needle biopsy. In the meantime he will continue to take Tagrisso and hope that it is enough to get us to our next step.
Is seems like we just figured out how to control Aaron's nausea and were getting him to gain weight when a wicked rash showed up and with it extreme pain. It is a side effect of one of the new drugs. We knew of this side effect, but didn't know how extreme it would become. He had me try multiple creams and ointments to control it and maybe that contributed to it getting out of control. Treating the rash consists of him sleeping his days away while the skin heals and also holding off on the new drug until the rash is under control. I requested to have IV fluids at home so he doesn't dehydrate. Eating is another worry AND getting all the layers of cream we slathered on is an additional worry. I work on wiping the layers away to get down to the raw, red skin. Cancer just isn't pretty. He does not complain and is thoughtful even in his extremities. It was our daughter's birthday this week and I went to check on Aaron and in his hand was a ten dollar bill he had got...
You are always in my prayers. A day at a time. 💕Love, Mary Kay Lewis.
ReplyDeleteSo sorry! We're thinking of you guys!
ReplyDeleteWe love you!
ReplyDeleteYou are in my prayers. I think of you often and am so inspired by your lives.
ReplyDelete