I'd like to point out two things from this photo. One, Aaron is sleeping while sitting up. Two, he has fallen asleep while in the middle of texting someone. If ever you receive a text from him full of nonsense, you will know why. His white count is pretty low and that makes for one tired Big A. Something this picture doesn't show is that he still gets out of bed and goes to work each day. It doesn't show what all is requited of him each day in order to preserve his life. And through it all he is still pleasant and full of hope and optimism. I wish he didn't have to go through this cancer, but Gandolf had something to say about such sentiments: "so do all who live to see such times. But that is not for them to decide. All we have to decide is what to do with the time that is given us." Fitting advice.
Is seems like we just figured out how to control Aaron's nausea and were getting him to gain weight when a wicked rash showed up and with it extreme pain. It is a side effect of one of the new drugs. We knew of this side effect, but didn't know how extreme it would become. He had me try multiple creams and ointments to control it and maybe that contributed to it getting out of control. Treating the rash consists of him sleeping his days away while the skin heals and also holding off on the new drug until the rash is under control. I requested to have IV fluids at home so he doesn't dehydrate. Eating is another worry AND getting all the layers of cream we slathered on is an additional worry. I work on wiping the layers away to get down to the raw, red skin. Cancer just isn't pretty. He does not complain and is thoughtful even in his extremities. It was our daughter's birthday this week and I went to check on Aaron and in his hand was a ten dollar bill he had got...

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ReplyDeleteSorry you have to go through this, Aaron. You certainly do well with the circumstances you've been given, are an example to all of us.
ReplyDeleteSleep deep, Aaron. By all accounts, you earn your rest better than anyone I know. Love and continuing prayers for you and your family.
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