Thank you for your prayers and fasting and words of love and encouragement. We have most definitely felt the power of your faith.
Aaron doesn't have the genetic marker we were most hoping for (MET) but he does have the marker that qualifies him for the drug trial at Huntsman. We are grateful he has an option besides chemo. Aaron will be the only person in Utah in the drug trial and the doctor is really excited about it. In the Petri dish, in mice, and in theory this treatment works, but the real test will be if it works in Aaron. We are about finished with all the requirements to get into the study (scans, eye exam, blood tests, etc) and he will begin this Thursday. He does have to have another lung biopsy shortly after he begins and then again at the end when he shows signs of progression on the drug. My hope is this drug will work and work long enough for there to be another good option besides chemo. Maybe in the meantime Aaron will develop MET (because it is an acquired genetic mutation there is always a chance he will develop it). The only side effect from this drug is blurred vision. Aaron has had that before and it is frustrating. He will wear a cold pack on his eyes during infusion and needs to wear uv sunglasses any time he is in the sun. The way I understand, this drug is a chemo but the delivery system is such that it is delivered only to the cancer cells and not every cell in the body like typical chemos. We are excited and anxious to begin.
It is an interesting balance between knowing, "With men it is impossible, but not with God: for with God all things are possible." and at the same time knowing the realities of this cancer and that the world won't end if we aren't a part of it. Balancing what we want the most while being willing to accept God's will no matter what. I will keep pleading for life saving miracles until it is clear what the Lord's will is for Aaron and our family. Thank you for adding your faith to ours.
When Aaron was first diagnosed and his doctor told us how much time he thought he could get Aaron my thought was, "but that doesn't even get Lily to her baptism day." Lily turned eight last Sunday and the bishop allowed her to get baptized on the same day as her birthday. Best of all Aaron was here to baptize her. Lily's life is an example of a miracle comparable to those we read of in the Bible. Before her delivery, all her blood drained from her body. For 27 minutes she did not have a heart beat. The doctors told Aaron they felt they could save me, but did not know about our baby and if she did survive they had no idea how much brain damage she would have. It was the most impossible situation we had ever been in, and yet here she is 100% functional. Lily's baptism was a reminder to me of the miracle of her life and the greater miracles associated with the miracle of eternal life.
Aaron doesn't have the genetic marker we were most hoping for (MET) but he does have the marker that qualifies him for the drug trial at Huntsman. We are grateful he has an option besides chemo. Aaron will be the only person in Utah in the drug trial and the doctor is really excited about it. In the Petri dish, in mice, and in theory this treatment works, but the real test will be if it works in Aaron. We are about finished with all the requirements to get into the study (scans, eye exam, blood tests, etc) and he will begin this Thursday. He does have to have another lung biopsy shortly after he begins and then again at the end when he shows signs of progression on the drug. My hope is this drug will work and work long enough for there to be another good option besides chemo. Maybe in the meantime Aaron will develop MET (because it is an acquired genetic mutation there is always a chance he will develop it). The only side effect from this drug is blurred vision. Aaron has had that before and it is frustrating. He will wear a cold pack on his eyes during infusion and needs to wear uv sunglasses any time he is in the sun. The way I understand, this drug is a chemo but the delivery system is such that it is delivered only to the cancer cells and not every cell in the body like typical chemos. We are excited and anxious to begin.
It is an interesting balance between knowing, "With men it is impossible, but not with God: for with God all things are possible." and at the same time knowing the realities of this cancer and that the world won't end if we aren't a part of it. Balancing what we want the most while being willing to accept God's will no matter what. I will keep pleading for life saving miracles until it is clear what the Lord's will is for Aaron and our family. Thank you for adding your faith to ours.
When Aaron was first diagnosed and his doctor told us how much time he thought he could get Aaron my thought was, "but that doesn't even get Lily to her baptism day." Lily turned eight last Sunday and the bishop allowed her to get baptized on the same day as her birthday. Best of all Aaron was here to baptize her. Lily's life is an example of a miracle comparable to those we read of in the Bible. Before her delivery, all her blood drained from her body. For 27 minutes she did not have a heart beat. The doctors told Aaron they felt they could save me, but did not know about our baby and if she did survive they had no idea how much brain damage she would have. It was the most impossible situation we had ever been in, and yet here she is 100% functional. Lily's baptism was a reminder to me of the miracle of her life and the greater miracles associated with the miracle of eternal life.
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| It's great to be 8! |
Keep fighting Aaron! You really have no idea how many of us are praying and hoping you can beat this thing. You are an inspiration is so many ways to so many people! Lorraine, while I don't know you personally, I sincerely admire your strength and appreciate your constant updates/posts. Love you Big A! Thoughts and prayers, Jason A Lyle-
ReplyDeleteWhat a wonderful day that baptism was! There are so many miracles in our lives, and so nice to be reminded of that special one for Lily. Continued prayers and faith and love for you all. Aunt Jill
ReplyDeleteFlecks of gold. ❤️U
ReplyDelete