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Showing posts from October, 2016

First Dose

First Dose... Aaron received his first dose of Necitumumab (Neci for short). He drove to Sacramento on Sunday to be there for some pretesting on Monday and receive treatment on Wednesday. He ended up being gone a day longer because the side effects came in full force. He had a migraine, blurry vision, nausea, and chills. The side effects should lessen after the second dose. We are grateful the Lord has opened this door for us. It feels good to have this treatment going.

On Track...

We had a great visit at UC Davis this week. Aaron is on track to beginning his new treatment there. First, he has to have new scans. Second, he has to complete a seven day washout period by not taking his current medication, Tagrisso. When these two things are complete he can begin. We are almost there. About a week and a half and he should be able to start. The timing for Aaron couldn't be better. Soon this drug trial will be closed to patients who have ever taken Tagrisso. We are anxious for him to get going. We are feeling blessed... The cancer facility is small, but the staff taking care of Aaron is wonderful. The spire of the Sacramento Temple. Our temples are symbolic of all that is truly important to us. This is the first time we've had a nurse stand on a chair to measure Aaron's height. Usually, Aaron just pulls the bar up for them because none of them can reach that high. 

Good News

We received great news last week. Aaron's biopsy results show that he has a specific mutation (C797s) we were hoping for. There was a 3-5% chance this mutation would show up, so we are feeling blessed and grateful. There is a drug trial at UC Davis targeting this specific mutation. It is the only drug trial in all the country focusing on this. One of Aaron's oncologists is personal friends with the doctor over the trial. Aaron's doctor made a phone call saying Aaron needed to be in it. We received a call from UC Davis that same day saying there is ONE spot open and it is being reserved for Aaron. So many miracles. We have been learning that some miracles are obvious and others are such that we have to really look for them. We are grateful for the obvious miracles of this week and for the many reminders that the Lord is truly in the details of our lives. We have an initial visit with the UC Davis doctor this week and Aaron will need to have new scans and some other te...