Boston

Boston Harbor

Boston was a success. Very helpful visit with an amazingly sharp doctor. The next step is a needle biopsy. We wish we could have had it done at Dana Farber (Boston Cancer Hospital) but Aaron can't fly for a week after the procedure. They could have gotten the biopsy completed and results back within a week. It will take Huntsman a month to get results back, but first they need to find room in the schedule for Aaron to have the procedure done. Always hiccups along this journey.

Boston oncologist (Dr. Oxnard) did do a blood biopsy while we were there. The results were good. The level of EGFR mutation is very low. This means Aaron's cancer is "quiet." It means we have some time to do a needle biopsy and figure out the next best treatment. Oxnard commented on the fact that what we see on the scans as cancer progression doesn't look like the progression we have seen in the past. He said it's possible this isn't progression. It probably is, but there is some question. That is why we need a biopsy ASAP. If a particular mutation shows up on the biopsy, Aaron will be eligible for a drug trial that combines a chemo with his current Tagrisso treatment. He will have to go to UCDavis to get it, but we will cross that bridge when it comes.

Boston LDS Temple

In the meantime, we continue to seek for guidance on how the Lord would have us live the life we have been given. What matters most to us is that we are found doing what He would have us do and be. I have been thinking of Aaron's favorite hymn: "I'll Go Where You Want Me to Go"



It may not be on the mountain height

1. Or over the stormy sea,
   It may not be at the battle's front
   My Lord will have need of me.
   But if, by a still, small voice he calls
   To paths that I do not know,
   I'll answer, dear Lord, with my hand in thine:
   I'll go where you want me to go.
2. (Chorus)
   I'll go where you want me to go, dear Lord,
   Over mountain or plain or sea;
   I'll say what you want me to say, dear Lord;
   I'll be what you want me to be.
   
   

To paths that I do not know,...like cancer and cystic fibrosis...with my hand in thine...I can't do this alone...I'll go where you want me to go...I'll be what you want me to be....I will give you my heart without condition, without hesitation, fully and completely. Personally, this is all a process and I am grateful for this time of tutoring with our Savior. Many days I feel I am signed up for a course I am incapable of passing; way above my skill level and intelligence, but I know in Whom I trust and that makes all the difference.

We love you all and our hearts take courage and find comfort each time you tell us we are in your prayers.